Essential Tremor in Children

Essential tremor (ET) is often thought of as an adult onset condition. However, it can start in early childhood affecting about 5% of children, predominantly involving the hands and there is often a family history of tremor. There are two kinds of hand tremor which are: Kinetic tremor only (i.e. tremor present only when the hands are moving) and Postural tremor only (i.e. tremor is visible when the hands are held outstretched) with some children experiencing both.  The hand tremor leads to difficulty with:

  • Holding a hot drink
  • Drinking from a cup
  • Using a spoon
  • Writing
  • Typing
  • Drawing
  • Using tweezers
  • Painting nails
  • Playing a musical instrument

Very little is known about the treatment of ET in childhood but it is helpful to be open about the condition, to discuss it and to have a common sense open approach. Children will often cope better than adults until school age when often a variety of problems such as writing, school meal times and comments from peers, may cause anxiety and embarrassment.

The NTF would like to feature some children's/young people’s stories and how you cope with living with tremor. We would like to know about the challenges you face, what help you receive, how supportive your peers are and to provide advice to other young people and their parents.

We are really keen to make people aware that young people can have tremor too. If you would like to help the NTF to raise awareness about tremor, please log in below to post your comment.

Saturday 16th January 2010 22:37

Hey everyone.
I'm Ed, 17, and at college. What does everyone else find with the Tremor condition? Family, Friends, Tasks, etc?
Personally, carrying hot drinks as mentioned above is one of the bane's of my life :P but its okay if you get someone else to carry it.
Drawing is another problem after a while as my hands begin to hurt, which isn't great as one of my main hobbies is art. However I have got around this as my favourite art is Street Art or 'graffiti' (everyone has heard of Banksy, but there are thousands of others out there), as instead of having to grip a pen really hard, I can use a spray can (legally of course), which is a lot easier on the hands when you get used to it.
My mates dont care about it and also I feel it easy to make jokes about it - what about everyone else? any thoughts or tips you wanna share?
cheers.

Saturday 20th March 2010 14:10

Hi Ed, I am an Ed with essential tremor too but I am 73 and left college a long time ago ;-) Perhaps I am too old to be writing here but I just wanted to say well done for being so positive about your condition and finding a way to follow your hobbie. I had mates who supported me too and you are so right.........humour about your condition gets you a lot of street cred. No-one is perfect and we all have issues to overcome, being positive wins you more friends than bemoaning your lot in life. I have been happily married for over 50 years, have a daughter old enough to be your mother and indeed a grandson who is a couple of years older than you, all who have been very supportive of my condition. I wish you well young man and feel sure you have a great future ahead of you (sorry I have not heard of Banksy but I will keep my eye open for your name in the future ;-) ..........and remember how lucky you are to have the advances in technology you take for granted, computers would have changed my life if they had been around when I was your age.
Ed

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