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Welcome to the website of the National Tremor Foundation.

The NTF represents over 1 million people in the UK with Tremor

Please explore the website

The National Tremor Foundation (or NTF as we are known) is an organisation where we aim to provide help, support and advice to all those living with all forms of tremor irrespective of age.

The NTF was first brought to the UK from the USA in 1992 and in 1994 became a registered charity in its own right.

Each year the NTF holds an annual conference, subsidised by the NTF providing members and friends with the opportunity of not only meeting and spending some time together but also asking a panel of experts’ questions that help with improving quality of life.

The NTF produces a newsletter (NTF News) and this is available via post, email and our website. The NTF has developed close links with other UK voluntary organisations including the Parkinson’s Disease Society and the Neurological Alliance and also with international organisations including the European Parkinson’s Disease Association (EPDA) and the International Tremor Foundation. 

Misguided beliefs and a lack of awareness mean that many people with this condition never seek medical care though most would benefit from treatment. The NTF dedicates this site to the thousands of people in the UK whose lives are affected by tremor.

 

International Essential Tremor Foundation to Host First-ever Essential Tremor Expo in Phoenix

20 Jan 2015

Essential Tremor patients and their family and friends from across the nation will join together to get a first-hand look at the ins and outs of essential tremor, a neurological condition affecting 10 million Americans, through hands-on exhibits and presentations from experts.

PRWeb

Study shows innovative use of smartwatch in diagnosis of tremors

15 Jan 2015

Researchers from the University of Calgary have demonstrated that tremors can be accurately diagnosed and assessed using a smartwatch.

Palatal tremor in progressive supranuclear palsy: A case report

7 Jan 2015

Palatal tremor (PT) is an uncommon movement disorder, and an exceptional finding even in a movement disorders clinic. It is characterised by rhythmic contractions of the soft palate. When there is no attributable structural cause, it is termed essential PT.

Parkinsonism & Related Disorders Journal

TREM2 R47H variant and risk of Essential Tremor: A Cross-sectional International Multi-center Study

23 Dec 2014

There is growing evidence showing ET has common etiologic factors with other neurodegenerative disorders such as Alzheimer’s and Parkinson’s diseases (AD, PD). Recently, a rare p.R47H substitution in the TREM2 protein has been proposed as a risk factor for AD, PD and amyotrophic lateral sclerosis (ALS). The objective of the study was to determine whether TREM2 p.R47H allele is also a risk factor for developing ET.   The results suggest that p.R47H (rs75932628) variant may contribute to the susceptibility of ET in Spanish population. However, taking into account the very low frequency of p.R47H, further confirmatory analyses of larger ET series are needed.

Parkinsonism & Related Disorders Journal

A comparison between rate of nonmotor symptom development in essential tremor and Parkinson’s disease

21 Dec 2014

The aim of this study was to evaluate nonmotor symptoms in ET, and to compare them with PD. Evaluation of nonmotor symptoms in ET may help us to understand this emerging definition of ET. This study contributes evidence toward this new concept.

Acta Neurologica Belgica

Impact of advancing age on post-operative complications of deep brain stimulation surgery for essential tremor

18 Dec 2014

Essential tremor (ET) was the original indication for deep brain stimulation (DBS), with USA Food and Drug Administration approval since 1997. Despite the efficacy of DBS, it is associated with surgical complications that cause sub-optimal clinical outcomes. Given that ET is a progressive disease with increase in symptom severity with increasing age, this study evaluated the impact of increasing age on short-term complications following DBS surgery for ET. Findings suggest that age should not be a primary exclusion factor for determining candidacy for DBS and also suggest a possible expansion of the traditional therapeutic window since post-operative complications remained relatively stable.

Journal of Clinical Neuroscience

White matter lesions predict cognitive dysfunction in patients with essential tremor

13 Dec 2014

The aim of this study is to evaluate the relationships among vascular risk factors, MRI measures of white matter lesions (WMLs), and the rate of decline in the global cognitive functioning of elderly patients with ET. The study concludes that cognitive assessments should be part of clinical dialogs with elderly patients with ET, and prospective neuro-imaging studies and detailed neuropsychological tests should be performed when cognitive impairment related to ET is suspected.

Science Direct

Promising new hybrid therapy for treatment of tremors

11 Dec 2014

Clinical trials have begun for a therapy that could make a big difference for those living with Parkinson's disease or essential tremor disorder.  London-based Movement Disorders Diagnostic Technologies Inc. (MDDT) has created a first-of-its-kind technology developed from London Movement Disorder Centre research being done at University Hospital.

CTV News - London

Medication Non-Adherence in Essential Tremor

6 Dec 2014

This study aimed to present self-report data on medication adherence in Essential Tremor (ET) cases and examine the demographic and clinical factors that might be associated with lower medication adherence. Approximately one in four ET patients reported whole days in the past two weeks in which they had not taken their medication. It is possible that this relatively high rate of non-adherence could be a function of the poor therapeutic efficacy of the medications currently available to treat ET.

Parkinsonism & Related Disorders Journal

Cognitive functions, fatigue, depression, anxiety, and sleep disturbances: assessment of nonmotor features in young patients with essential tremor

5 Dec 2014

The goal of this study was to examine nonmotor features in young patients with essential tremor (ET) and their impact on quality of life. This study showed that even young patients have nonmotor features that decrease their quality of life.

Acta Neurologica Belgica
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