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Welcome to the website of the National Tremor Foundation.

The NTF represents over 1 million people in the UK with Tremor

Please explore the website

The National Tremor Foundation (or NTF as we are known) is an organisation where we aim to provide help, support and advice to all those living with all forms of tremor irrespective of age.

The NTF was first brought to the UK from the USA in 1992 and in 1994 became a registered charity in its own right.

Each year the NTF holds an annual conference, subsidised by the NTF providing members and friends with the opportunity of not only meeting and spending some time together but also asking a panel of experts’ questions that help with improving quality of life.

The NTF produces a newsletter (NTF News) and this is available via post, email and our website. The NTF has developed close links with other UK voluntary organisations including the Parkinson’s Disease Society and the Neurological Alliance and also with international organisations including the European Parkinson’s Disease Association (EPDA) and the International Tremor Foundation. 

Misguided beliefs and a lack of awareness mean that many people with this condition never seek medical care though most would benefit from treatment. The NTF dedicates this site to the thousands of people in the UK whose lives are affected by tremor.

 

Non-Steroidal Anti-Inflammatory Drug Use and Essential Tremor

5 Nov 2014

Non-steroidal anti-inflammatory drugs (NSAIDs) have been shown to be inversely related to Parkinson's disease and Alzheimer's disease, both of which may share common mechanisms with essential tremor (ET). Use of these medications has not been studied in ET cases vs. controls. This study investigates the relationships between NSAID (esp. ibuprofen) and aspirin use and ET.

Karger

Incidence Rates of Cranial Tremors in Essential Tremor: A Prospective, Longitudinal Study

5 Nov 2014

Cranial (head, jaw) tremors develop in a sizable number of essential tremor (ET) patients. They are particularly important because they are a significant source of embarrassment and are especially resistant to treatment. The aim of this study was to estimate the incidence rate of head and jaw tremors in ET to gain epidemiological data to assist physicians in counseling ET patients when they ask about their risks of developing cranial tremors.

Karger

The “Tremor Diary”: A Useful Tool in the Management of Patients with Tremor

28 Oct 2014

The tremor diary serves as an objective measure of tremor severity that can be reliably rated by clinicians. Although less precise than motion sensors, and subject to ceiling effects, the tremor diary is easily administered and does not require any electronic equipment.

Tremor and Other Hyperkinetic Movements (TOHM) 

Intention Tremor of the Legs in Essential Tremor: Prevalence and Clinical Correlates

23 Oct 2014

The aim of this study was to estimate the prevalence and assess the clinical correlates of intention tremor in the legs in essential tremor (ET) patients. Data suggest that intentional leg tremor is common in tremor patients and arm tremor has an intentional component in many ET patients. Intention tremor in the legs, however, has never been systematically evaluated.

International Parkinson and Movement Disorder Society

SAGE Therapeutics Initiates Exploratory Study of SAGE-547 in Essential Tremor

23 Oct 2014

SAGE Therapeutics (Nasdaq:SAGE) today announced dose initiation of the first patient in a single-center Phase 2a clinical trial of SAGE-547, an allosteric modulator of GABAA receptors, in patients with essential tremor. This trial is designed to evaluate the safety, tolerability, pharmacokinetics and activity of SAGE-547 in patients with essential tremor, a neurological disorder that causes involuntary, rhythmic shaking with no known cause. The trial is being conducted under a newly accepted Investigational New Drug filing.

Evaluating Familial Essential Tremor with Novel Genetic Approaches: Is it a Genotyping or Phenotyping Issue?

20 Oct 2014

Essential tremor is a common movement disorder with a strong heritable component. Large families with inherited forms of essential tremor have undergone genetic analyses by different approaches. This study emphasizes the remarkably challenging field of tremor genetics and indicates that future studies should perhaps shift to analysis of the non-coding genome.

Tremor and Other Hyperkinetic Movements (TOHM) 

Sound Waves Can Heal Brain Disorders

16 Oct 2014

"Using ultrasound to make lesions in the body is not a new concept; however, it's been limited for the brain because of the contours, density and thickness of the skull," says neurologist and study investigator Binit Shah.  Shah and his colleagues' pilot study of patients with essential tremor - a common, usually benign condition of rhythmic shaking - was published in the New England Journal of Medicine last year and found that ultrasonic lesioning of part of the thalamus decreased tremor. The group is expanding the trial and launching other pilot studies to explore several symptoms of Parkinson's.

Scientific American

Murder mystery night raises over £700 for National Tremor Foundation

10 Oct 2014

The murder mystery night, held at The Anchor public house in Little Downham, raised more than £700 for the foundation, which in turn funds research into Primary Orthostatic Tremor.

Influence of common synaptic input to motor neurons on the neural drive to muscle in essential tremor

1 Oct 2014

By using novel methods for the decomposition of multichannel surface EMG, results provide the first systematic analysis of the neural drive to the muscle in essential tremor and elucidate some of its characteristics that determine the pathological tremulous muscle activity.

Boston Scientific Receives CE Mark For The Vercise(tm) DBS System For Treating Patients With Tremor

17 Sep 2014

Boston Scientific Corporation has received CE Mark for the Vercise™ Deep Brain Stimulation (DBS) System for the treatment of tremor, including the most common form of this movement disorder known as essential tremor (ET). Tremor is characterized by involuntary and rhythmic shaking, usually associated with difficulty in an activity such as writing or holding and controlling items.

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