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Welcome to the website of the National Tremor Foundation.

The NTF represents over 1 million people in the UK with Tremor

Please explore the website

The National Tremor Foundation (or NTF as we are known) is an organisation where we aim to provide help, support and advice to all those living with all forms of tremor irrespective of age.

The NTF was first brought to the UK from the USA in 1992 and in 1994 became a registered charity in its own right.

Each year the NTF holds an annual conference, subsidised by the NTF providing members and friends with the opportunity of not only meeting and spending some time together but also asking a panel of experts’ questions that help with improving quality of life.

The NTF produces a newsletter (NTF News) and this is available via post, email and our website. The NTF has developed close links with other UK voluntary organisations including the Parkinson’s Disease Society and the Neurological Alliance and also with international organisations including the European Parkinson’s Disease Association (EPDA) and the International Tremor Foundation. 

Misguided beliefs and a lack of awareness mean that many people with this condition never seek medical care though most would benefit from treatment. The NTF dedicates this site to the thousands of people in the UK whose lives are affected by tremor.

 

Cognitive functions, fatigue, depression, anxiety, and sleep disturbances: assessment of nonmotor features in young patients with essential tremor

5 Dec 2014

The goal of this study was to examine nonmotor features in young patients with essential tremor (ET) and their impact on quality of life. This study showed that even young patients have nonmotor features that decrease their quality of life.

Acta Neurologica Belgica

Your Questions Answered: Essential Tremor: When medications don't work, what are some of the treatment options for essential tremor?

1 Dec 2014

Once known as familial tremor, benign essential tremor (ET), or senile tremor, ET is a neurologic condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. Early on, some people even feel an internal shake without a visible tremor. Its exact cause is unknown, although genetic factors are probably important. ET is often confused with Parkinson's disease, although it is eight times more common, affecting an estimated 10 million Americans and millions more worldwide.

Neurology Now

International Essential Tremor Foundation Honored as 2014 Top-Rated Nonprofit

1 Dec 2014

The International Essential Tremor Foundationannounced today that it has been honored with a prestigious 2014 Top-Rated Award by GreatNonprofits, the leading provider of user reviews about nonprofit organizations.

PRWeb

Google's Latest: A Spoon That Steadies Tremors

25 Nov 2014

Just in time for the holidays, Google is throwing its money, brain power and technology at the humble spoon. Of course these spoons (don't call them spoogles) are a bit more than your basic utensil: Using hundreds of algorithms, they allow people with essential tremors and Parkinson's Disease to eat without spilling.

Mitochondrial serine protease HTRA2 p.G399S in a kindred with essential tremor and Parkinson disease

11 Nov 2014

Some but not all persons with essential tremor develop signs of Parkinson disease, and the relationship between the conditions has not been clear. In a six-generation consanguineous Turkish kindred with both essential tremor and Parkinson disease, whole exome sequencing and pedigree analysis, identifying HTRA2 p.G399S as the allele likely responsible for both conditions was carried out. Results suggest that in some families, HTRA2 p.G399S is responsible for hereditary essential tremor and that homozygotes for this allele develop Parkinson disease. This hypothesis has implications for understanding the pathogenesis of essential tremor and its relationship to Parkinson disease.

PNAS

Non-Steroidal Anti-Inflammatory Drug Use and Essential Tremor

5 Nov 2014

Non-steroidal anti-inflammatory drugs (NSAIDs) have been shown to be inversely related to Parkinson's disease and Alzheimer's disease, both of which may share common mechanisms with essential tremor (ET). Use of these medications has not been studied in ET cases vs. controls. This study investigates the relationships between NSAID (esp. ibuprofen) and aspirin use and ET.

Karger

Incidence Rates of Cranial Tremors in Essential Tremor: A Prospective, Longitudinal Study

5 Nov 2014

Cranial (head, jaw) tremors develop in a sizable number of essential tremor (ET) patients. They are particularly important because they are a significant source of embarrassment and are especially resistant to treatment. The aim of this study was to estimate the incidence rate of head and jaw tremors in ET to gain epidemiological data to assist physicians in counseling ET patients when they ask about their risks of developing cranial tremors.

Karger

The “Tremor Diary”: A Useful Tool in the Management of Patients with Tremor

28 Oct 2014

The tremor diary serves as an objective measure of tremor severity that can be reliably rated by clinicians. Although less precise than motion sensors, and subject to ceiling effects, the tremor diary is easily administered and does not require any electronic equipment.

Tremor and Other Hyperkinetic Movements (TOHM) 

Intention Tremor of the Legs in Essential Tremor: Prevalence and Clinical Correlates

23 Oct 2014

The aim of this study was to estimate the prevalence and assess the clinical correlates of intention tremor in the legs in essential tremor (ET) patients. Data suggest that intentional leg tremor is common in tremor patients and arm tremor has an intentional component in many ET patients. Intention tremor in the legs, however, has never been systematically evaluated.

International Parkinson and Movement Disorder Society

SAGE Therapeutics Initiates Exploratory Study of SAGE-547 in Essential Tremor

23 Oct 2014

SAGE Therapeutics (Nasdaq:SAGE) today announced dose initiation of the first patient in a single-center Phase 2a clinical trial of SAGE-547, an allosteric modulator of GABAA receptors, in patients with essential tremor. This trial is designed to evaluate the safety, tolerability, pharmacokinetics and activity of SAGE-547 in patients with essential tremor, a neurological disorder that causes involuntary, rhythmic shaking with no known cause. The trial is being conducted under a newly accepted Investigational New Drug filing.

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